Family overwhelmed by community support to help buy mobility van for 7-year-old boy with rare condition causing progressive loss of bones

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The wheels are well and truly in motion for a fundraiser to help Timaru seven-year-old Chase Pinnell and his family purchase a mobility van with  an impressive $11,000 raised in just a few days sending the total over the $13,000 mark.
Chase, a pupil at Timaru's Bluestone School, has a rare condition called multicentric​ carpotarsal​ osteolysis​ and requires a 250 kilogram wheelchair to get around independently.
The school started a campaign to raise funds for a van with a hoist lift to help his family purchase a vehicle suitable for transporting the wheelchair, so it no longer has to be left at school each day.
Chase Pinnell with some of the money raised to help buy a mobility van so he can take his wheelchair home from school ...
JOHN BISSET/STUFF
Chase Pinnell with some of the money raised to help buy a mobility van so he can take his wheelchair home from school each day.
So far the fundraiser has raised about $13,000, $3000 of which came in as people exchanged money for ink at the weekend's Caroline Bay Rock and Hop event. Two cheques, one for $5000 and another for $500, were handed to the school yesterday, significantly boosting the tally. 
Timaru business Arkane Tattoo, the owners of which are friends of the Pinnell family, raised $2950 tattooing at the South Canterbury Hospice fundraiser on Saturday, offering their tattooing skills with 100 per cent of proceeds going to the fundraiser.
Chase Pinnell pictured with his school mates from left, Matthew Shaw, 11, Grace Edwards, 12 and Liam Geddis, 11
JOHN BISSET/STUFF
Chase Pinnell pictured with his school mates from left, Matthew Shaw, 11, Grace Edwards, 12 and Liam Geddis, 11
A Givealittle page set up by the school on Friday had received $2730 from 52 donors by Monday afternoon.
Chase was diagnosed with rare skeletal dysplasia as a two-year-old, and lives in pain as his bones are attacked by a gene in his body which dissolves them. So far it has affected Chase's hand, feet, knees, elbows and eyesight with the condition leading to crippling joint deformities. He is now unable to walk and gets around on his knees or his wheelchair. He is also at risk of renal failure.
Chase's mother Juanita said the family had been overwhelmed by the support from the community.
The family spent much of Saturday at Arkane's stall at the Rock and Hop, topping off a massive weekend for Chase who also took part in the fundraiser's Friday night main street cruise.
"Chase spent a lot of time meeting people on the Saturday and hooning around on his chair and even helped some people choose their tattoos," she said.
"We are still at the stage where we don't even know what to say to people. We are just so, so grateful to people for their generosity."
She said it made the family proud of the community they live in.
"Timaru has really stacked it up," she said.
"We're still trying to pick our jaws up off the floor."
Bluestone School began fundraising for the vehicle, which will cost between $15,000 and $20,000, at the start of the year.

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